SMA explained: The rare genetic condition affecting Jesy Nelson's twins

Jesy Nelson, who gave birth to twins Ocean and Story prematurely in May, said the girls were diagnosed with type 1 spinal ...
Medical Xpress

What you should know about spinal muscular atrophy

Spinal muscular atrophy (SMA) is a genetic neuromuscular disease affecting specialized nerve cells that control voluntary muscle movement, according to the Muscular Dystrophy Association (MDA). It can ...

Jesy Nelson Reveals Twins' Rare Diagnosis—What Parents Need To Know About Spinal Muscular Atrophy

British singer Jesy Nelson recently took to Instagram to share a devastating update about her 8-month-old twin daughters.
News Medical

Real-world data validates gene therapy for spinal muscular atrophy

Findings from a new study in the Journal of Neuromuscular Diseases, published by IOS Press, demonstrate the effectiveness of disease-modifying treatments (DMTs) in infants with spinal muscular atrophy ...
New Atlas

Infant's genetic muscle disorder improved by treating pregnant mother

Spinal muscular atrophy is a debilitating genetic condition that’s usually fatal by a few years of age. But an intriguing case study might demonstrate a simple new treatment, with a child showing no ...
TheHealthSite

Little Mix Singer Jesy Nelson Shares Rare Health Update About 8-Month-Old Daughters, Feeding Tube Clip Goes Viral: What Is Muscular Disease?

On January 4, former Little Mix singer Jesy Nelson took to Instagram to reveal that her twins have been diagnosed with spinal ...

Spinal Muscular Atrophy: Symptoms to life expectancy after Jesy Nelson's heartbreaking news

Jesy Nelson gave birth to her twin girls prematurely in May 2025 - now she's revealed her six-month-olds have been diagnosed with a life-changing illness ...
Healio

Gene therapy slows progression of spinal muscular atrophy type 2

We were unable to process your request. Please try again later. If you continue to have this issue please contact [email protected]. Topline results from a phase 3 clinical trial showed an ...
Monthly Prescribing Reference

One-Time Gene Therapy Itvisma Approved for Spinal Muscular Atrophy

Credit: Novartis. The approval was supported by data from phase 3 STEER study, which enrolled patients with SMA who were treatment-naive and able to sit but never able to walk independently. Itvisma ...

What is spinal muscular atrophy? As Jesy Nelson shares twins’ diagnosis

Former Little Mix star Jesy Nelson revealed on social media that her twin girls have been diagnosed with a rare genetic ...
Medscape

Gene Therapy Tops Nusinersen in Spinal Muscular Atrophy

Treatment with onasemnogene abeparvovec gene therapy for spinal muscular atrophy (SMA) type 1 was associated with less need for nutritional support or nighttime ventilation compared to recommended ...
Healio

Gene therapy improves motor function in spinal muscular atrophy at 52 weeks

We were unable to process your request. Please try again later. If you continue to have this issue please contact [email protected]. Patients treated with onasemnogene abeparvovec recorded ...