Alice Wong, a disability rights activist with spinal muscular atrophy who died in November, left behind a legacy of advocacy and action.

Until relatively recently, children and young people with life-shortening conditions were not expected to survive into ...

The Muscular Dystrophy Association has opened applications for its 2026 college scholarship program for students with ...

In research published in Developmental Medicine & Child Neurology, investigators have developed a brief, reliable, and valid ...

Nila Morton, a graduate student at Howard University, was excited to be traveling back to South Carolina for Thanksgiving after almost a year of being away from home. Morton, 25, was born with a rare ...